We have been in hospital for almost 2 weeks now. We do have some positive news though - there is a slight chance we may head home on Sunday. We are starting to be given all of the necessary information and our collection of drugs has been packaged up, so hopefully Sunday will be the day. We won't get our hopes up too high though.
Oliver had a second lumbar puncture today. He hardly slept and didn't feed real well after it, so we suspect it gave him a bit of a headache. It is so hard to know what is happening inside our little boy. Is he in pain, does his head hurt, is he feeling nauseas, is he uncomfortable, is he just being a little boy, is he tired, is he experiencing mood swings from the drugs. The next few weeks, maybe even the months, are going to be a relearning of his cues.
We are tired today. Even though we have been getting some sleep, I think the constant presence of nurses, doctors, other people, each other, and the need to be at Oliver's side all the time is starting to wear us down a little. Hopefully he will sleep well tonight and mum will get a good nights sleep, though she will need to get up to feed him. With any luck the nurses won't disturb him too much tonight either.
I still need to recount our first week in hospital, but that will have to wait. For now I will try to sleep as I foresee a restless night ahead.
2 comments:
Its good to be able to read the progress without having to hassle you with phone calls and emails etc. We hope things get better and that you can go home to some sort of normality for all your sakes.We are thinking of you constantly and sending our love and best wishes...xxxx Letty & Bill
Awesome that you may get home on Sunday. It'll make you feel that much more relaxed being home and hopefully you'll both be able to stop for a second! Thinking of you all! *hug*
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