The good news is that the PET scann seems to have been as good as it could have been. There are no areas in Oliver where the cancer is active. He had a CT scan yesterday and a bone scan today, but I expect that these will tell us that the affected areas in Oliver's body will have shrunk back to the size they were supposed to be, and that any lesions on his bones will have disappeared. We won't know for real until Monday or Tuesday. But yesterday was the first time the 'remission' word came up in discussions. I feel like that should fill me with joy and make me sing and dance around, but it doesn't. Oliver still has 11 more months of treatment, 11 more months during which we could have a significant amount of time at PMH, 11 more months of side effects, 11 more months in which to see new faces come through the doors to 3b. And we will live with the dark cloud of relapse hanging over our heads. But for now, he is winning, even if he doesn't always look it. Carpe diem will be our cry from now on.
It seems that Oliver's little tummy, or bowel, is cramping up a bit, causing him to not sleep terribly well. It didn't seem to cause him much pain today, but he wasn't in a good way last night, needing his morphine turned up. Tonight they will try a different drug to see how well it works.
He does seem to have a greater amount of energy. He didn't sleep much today, but was quite playful, which was lovely. He hasn't been as boisterous and active in his play for a quite a while. Unfortunately, yesterday they had to put a drip into his hand, so his right hand is bandaged up and splinted, meaning that he can't really grasp things to well, though it isn't really stopping him. Hopefully he will settle and sleep well for mum tonight - she needs a good block of sleep.
Karli and I took off for an hour tihs evening for a drink. Unfortunately I only had a pair of denim shorts on, so no Subiaco bar is going to let me in, so we ended up in Dome. We sat and cuddled and chatted a bit, but for the most part we just watched people, and allowed ourselves to be distracted by what was happening around us. We hardly had the capacity to really talk too much about anything in depth.
The weekend should be fairly quiet as far as procedures and anything new goes, as long as the canula in his hand keeps on keeping on. Monday or Tuesday a decision will need to be made about his port. It could be infected and need to come out, which would be a bummer. There's always something. What constitutes normal life will be quite different for us over the year to come.